Tuesday, August 2, 2011

Addicted to blogs...Links from the medically mystifying to the artfully interesting!

Well, lately I've been obsessed. Obsessed with blogs. I love them. It started simple, I was seeking to understand some of what my friends and I have been dealing with medically....and I know a lot of people dealing with a range of interesting and unique syndromes, quirks, and debilitating diseases as well as a couple talented bloggers to boot. In an effort to gather info and get a glimpse into their lives, I ran across blogs by people going through the same things. OMGD! Why did it take this long for me to see how frickin' cool these things are.

I have to stop here and make a confession....  As a kid, I was obsessed with this book called "Harriet the Spy". Basically this little girl fancies herself a spy in her neighborhood. Every day she would follow her "route" in which she found creative ways to peek into people's windows or break into their houses to just watch their everyday activities... the boring details and the interesting quirks. Oh, how I wanted to do that (Not that I didn't try...but that's another story!). I wanted to be the proverbial fly on the wall so that I could look into other's worlds and watch them. Nothing kinky, mind you (shame on you!)... I just love to watch people. I love people. I mean it. LOVE THEM! I love the richness of expression in peoples faces... I love the stories they tell in their eyes when they don't know someone's looking. People are, in a word, fascinating.


So now back to blogs.... it's the window I've always dreamed about! And it's LEGAL! So now I'm obsessed.
And it suddenly occurred to me that other people might like the stories I've been reading because some of these blogs are just that awesome...

So here are a few links....

First is an extremely funny blog by a woman close to my heart....her family's struggles and laughs with autism and cystic fibrosis. A sweet dose of truth

Second is a woman who survived an airplane crash which burned 80% of her body! She had this blog before and after the crash.... she has posts dating back to 05. If you have the gumption, use google reader and read the archives...it's a fascinating glimpse into her life and eventual struggles. She also is a great cook and has another blog for food recipies...vegetarian. The link is on her site.
www.nieniedialogues.com

A hard read but well worth reading is a blog by a mom who has a son suffering from EB (Epidermolysis Bullosa: a condition where the skin blisters at the littlest things and sloughs off). Like I said, a hard read but a very interesting one. http://randycourtneytripproth.blogspot.com

I also found some wonderful blogs (too many links to add when I can just add one) on a site called Top Registered Nurse Blogs | Registered Nurse. These blogs are categorized by illness. I found some wonderful ones by mothers and people with Cystic Fibrosis, EB, Tourette's, etc...

Another wonderful source for blogs was in Top 50 Blogs in: special needs - NetworkedBlogs.com where I found an endless supply of endearing and honest looks into several special needs families.  A couple of my favs were:
 Autismville
 A life lived in wonder
 Life, Unscripted

Ok so that's all for now but my next post will be artistic blog links. Lots of them. I told you....obsessed.